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Rainbow In Bloom
США
Добавлен 12 дек 2016
This is a place for encouragement, insight and hope for the lovely people in this world who suffer from the autoimmune disease called scleroderma, and their friends and loved ones. I was diagnosed in 2007 with scleroderma, and in 2009 with lupus overlap. In 2012 I was diagnosed with stage 4B hodgkins lymphoma. I am a testimony of the grace and mercy of Jesus Christ, who, through faith, miraculously pulled me back from certain death. I've experienced a lot and want to share a message of hope and faith to let you see and hear that ALL things are possible.
Revolutionary Drug Trial Could Mean New Hope for Scleroderma Treatment
Are you tired of tackling one symptom after another with no end in sight? And the best you can hope for is that your suffering will plateau. Never are you given the hope of reversal/remission. Why is that? Because treatments today target symptoms, not the cause.
Today's episode is about a drug trial for a treatment intended to do accomplish what we're all waiting for: disabling the illness at its root cause. Watch the video and head on over the the link to find out more!
tinyurl.com/Sclerostudy
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ABOUT RAINBOW IN BLOOM
Rainbow in Bloom is a lifestyle brand created to inspire hope and courage in the warriors battling scleroderma and other autoimmune diseases,...
Today's episode is about a drug trial for a treatment intended to do accomplish what we're all waiting for: disabling the illness at its root cause. Watch the video and head on over the the link to find out more!
tinyurl.com/Sclerostudy
* * * * * * * * * * * * * * * * * * *
ABOUT RAINBOW IN BLOOM
Rainbow in Bloom is a lifestyle brand created to inspire hope and courage in the warriors battling scleroderma and other autoimmune diseases,...
Просмотров: 79
Видео
How 2024 Is Going So Far
Просмотров 1003 месяца назад
Just checking in with my scleroderma warriors for the first time in 2024.
Question of the Day: Hospital Improvement
Просмотров 165Год назад
#Chronicillness patients know a thing or two about hospitals and the quality of care. Let's have a discussion! Here are some of my experiences... #scleroderma #autoimmunedisease #lupus #sclerodermawarrior #survivor #whatisscleroderma #cureforscleroderma #mixedconnectivetissuedisease
Hey there! Remember Self Care!
Просмотров 2382 года назад
At times like this it's easy to neglect the basics. Personal care often takes a back seat under "normal" circumstances living with an autoimmune disease. But now that the whole world has gotten an idea of the isolation and anxiety autoimmune disease can generate, has it become even easier to neglect our personal maintenance? Please click to check out my book, How Death Saved My Life, on Amazon....
Tuesday Morning Affirmation
Просмотров 1513 года назад
Sometimes we need to be reminded we don't have to be perfect or have the perfect life... Don't forget to subscribe! My autobiography: How Death Saved My Life tinyurl.com/88z3x85x Natural Healthcare: The Lost Book of Herbal Remedies tinyurl.com/44uztndr * * * * * * * * * * * * * * * * * * * ABOUT RAINBOW IN BLOOM Rainbow in Bloom is a lifestyle brand created to inspire hope and courage in the wa...
Life Update & Corona Vaccine Experience
Просмотров 1413 года назад
Have you taken the COVID-19 vaccine? I am fully vaccinated but the process was NOT pretty! For the book on harvesting, preparing and descriptions of hundreds of medicinal herbs, visit tinyurl.com/2v27js7z. Natural healing is a very important avenue to explore. #vaccine #herbalremedies #autoimmunedisease
Choosing and Managing A Home Health Aid
Просмотров 2313 года назад
One of the most important choices you can make is whom to let into your personal space to help you manage your 'chronic' life. Take this advice from someone who's been there, done that and be encouraged that you're equipped with a game plan to spend more time healing, and less time stressing! For a natural approach to improving and maintaining the symptoms that plague you, check out this fabulo...
The Top 5 Natural Herbal Remedies for Autoimmune Disease
Просмотров 4623 года назад
AD: How Death Saved My Life - my book on overcoming mixed connective tissue disease and late-stage cancer here: bit.ly/howdeathsaved. THIS EPISODE: For many chronic illness sufferers the heightened attention to wellness in this pandemic time will last far beyond its resolution. The information in this video is based on The Book of Home Remedies (tinyurl.com/yysppk9s), a dense encyclopedia of hu...
Scleroderma Stories: Diagnosis to Remission
Просмотров 1,6 тыс.4 года назад
Like the disorder, every Scleroderma Story is unique. We go through many of the sam struggles in this crazy journey but there can be significant differences along the way. In the channel's first interview I speak with my guest, Sarah, about her sclero journey and how she came to a place where her illness stopped progressing and her health normalized - besides the permanent damage it caused. We ...
How The Corona Pandemic May Change Life for the Chronically Ill
Просмотров 834 года назад
How The Corona Pandemic May Change Life for the Chronically Ill
How To Defend Against Corona Infection
Просмотров 654 года назад
How To Defend Against Corona Infection
Scleroderma Skincare Pt. 3: The Face - Deep, Lasting Moisture Even With Dry, Hard Skin
Просмотров 2824 года назад
Scleroderma Skincare Pt. 3: The Face - Deep, Lasting Moisture Even With Dry, Hard Skin
Scleroderma Skincare Part 2: Winter Skin Exfoliation
Просмотров 1434 года назад
Scleroderma Skincare Part 2: Winter Skin Exfoliation
Living and Thriving With Scleroderma: Bernie Sanders on Disability
Просмотров 1714 года назад
Living and Thriving With Scleroderma: Bernie Sanders on Disability
Living & Thriving With Scleroderma - Holiday Life Hack
Просмотров 874 года назад
Living & Thriving With Scleroderma - Holiday Life Hack
Scleroderma - What To Do After Diagnosis
Просмотров 4404 года назад
Scleroderma - What To Do After Diagnosis
My Big Ole Stash of Drugs & Medical Supplies
Просмотров 1074 года назад
My Big Ole Stash of Drugs & Medical Supplies
Living and Thriving With Scleroderma - Caribbean Edition
Просмотров 634 года назад
Living and Thriving With Scleroderma - Caribbean Edition
A TRAIL To A Cure For Scleroderma May Be Just Ahead!
Просмотров 3044 года назад
A TRAIL To A Cure For Scleroderma May Be Just Ahead!
Living and Thriving With Scleroderma - Do THIS When You Wake Up!
Просмотров 865 лет назад
Living and Thriving With Scleroderma - Do THIS When You Wake Up!
Living and Thriving With Scleroderma: How I Kept Myself Inspired
Просмотров 1365 лет назад
Living and Thriving With Scleroderma: How I Kept Myself Inspired
Living and Thriving With Scleroderma - This End Is A New Beginning
Просмотров 1225 лет назад
Living and Thriving With Scleroderma - This End Is A New Beginning
Living With Scleroderma: A Juicy Spring Goal!
Просмотров 1545 лет назад
Living With Scleroderma: A Juicy Spring Goal!
Living and Thriving With Scleroderma - The 1 Thing To Do This Morning!
Просмотров 1525 лет назад
Living and Thriving With Scleroderma - The 1 Thing To Do This Morning!
Living With Scleroderma - Having My Chemo Port Removed!
Просмотров 2405 лет назад
Living With Scleroderma - Having My Chemo Port Removed!
Living With Scleroderma - Ridesharing With a Disability | Uber & Lyft
Просмотров 1515 лет назад
Living With Scleroderma - Ridesharing With a Disability | Uber & Lyft
Living With Scleroderma: Take The FDA Chronic Pain Survey!
Просмотров 1176 лет назад
Living With Scleroderma: Take The FDA Chronic Pain Survey!
Living With Scleroderma: 6 Tips for Managing Work and Scleroderma
Просмотров 2416 лет назад
Living With Scleroderma: 6 Tips for Managing Work and Scleroderma
Where to access the clinical trial?
Hello! The link is in the description.
@@RainbowInBloom thank you so much sister. I’m praying for your healing too. 💕
Hello Melissa. Are you familiar with the LGS Protocol? or the Coimbra Protocol. In Brazil there are many patients that have improved significantly after undergoing a anti-inflammatory diet alongside HDVD (High Dose Vitamin D) therapy. The studies done on microbiome analysis have shown many root causes and explain the pathogenesis. I highly recommend looking into it. Best regards, Dr Beltran.
my thoughts exactly
Thank you. You're healing is in my thoughts.
I hope you're doing better. You're in my prayers.
Just checking in. Hope you're doing better
Hi Melissa l, thank you for this update. I wanted to ask you on what kind of treatment you are currently one please ?
Currently I am not on anything specifically related to scleroderma.
I've taken methotrexate, plaquenil, gabapentin...you name it... But currently I'm not taking anything specifically related to scleroderma. My meds now are for cancer.
Thank you for this. But not sure what’s the exact name of this study really and you can only find more if sign up for it. I have read about a new drug named FT011 medication and it’s on trial 3 atm and focuses on anifibrosis. The previous 2 trials they been successful so I pray to God to help them and this can be a new treatment that can help us more than anything.
Hey Angela. The researchers are using a patient recruiting agency called Splash. I suppose they want to pre-qualify candidates before giving specifics on the organization running the study. But they have a number on their website if you have questions: splashclinical.com/em_case_study/scleroderma/
You are smart for your age😊
Thank you 🙏🌞
You are so welcome
Awesome video MELISSA. Good to see you. Thanks for sharing. Keep the content coming. Hope you have an incredible night
So glad to find your channel! I have been recently diagnosed with scleroderma and it’s done a number on my lungs. I hope to be added to the transplant list soon. I love your positive attitude even when facing hardships. You’re truly inspiring ❤
Welcome!
Nice to see you..but sad about your current diagnosis. 😢. You're an inspiration. You're now in my prayers. My lung disease hasn't progressed too much. Yhe loss of hand function is one of most regrettable aspects. SSc specialist says previous rheumatologist failed to diagnose RA.. hands disfigured and horrible thumbs arthritis (btw didn't you like arthritis surgery??). At least im able to walk. But i miss being able to dress myself adequately. I have a home aide 3x week. You have a great attitude. God bless you. Pajamas are Great...but its very difficult and painful for me to dress. I haven't worn non jogging pants in long time.
Hi Michael. Good news that your lung disease is stable. We have to appreciate the small wins. Unfortunately, sometimes we get the information we need too late. My brother always asks me if I got "a second opinion" when I tell him something. LOL But that's probably the ideal thing to do. But exhausting! I did have hand surgery to repair a slipped tendon in my right hand. Right now I'm testing out a hand massager. I think I'll do a review on it.
@@RainbowInBloomthank you 🙏🙏🙏
Hello… welcome back! I miss your videos. You were the first video back in 2021 when I was first DX with scleroderma.
Hi Rosa!
I’m so sorry that you’re going though cancer…. I can’t Even imagine… I’m so sad but I only pray and wish the best for you ♥️
So good to see you Melissa. Thanks for sharing. I am still hanging with you. Thanks for sharing. Keep the content coming. Hope you have an incredible night. Much love
Tim! Hello. Thank you so much! Hope all is well with you. 💛
Hello does scleroderma patches go away
Hi Joy! The signs and symptoms of the illness get better over time. But I don't think they completely go away.
Thank you so much!! This was very helpful ❤
How hard is it to get disability for CREST syndrome aka limited scleroderma? I was diagnosed in early 2019, all I was suffering from was raynauds, but every since early last year my hands are completely full of calcinosis and minor things like driving, sweeping etc... are a heavy chore. Not to mention the pain and severe stiffness.
Hope you are well!
Hope you are doing well
God bless! Thank u! 😢❤
Hello hope you're doing well. Did you have sclerodactyly?? How did you heal from that? Your hands look great now
Hi Michael. I'm super late! I've done some videos on that. Long story short, I believe that chemotherapy put the illness in remission. It doesn't mean that everything is back to normal as before, though.
Looking so lovely.
Nice to see your video. I fortunately have not been to the hospital too many times. though i have Systemic scleroderma and polymyositis. Though But it's s nice when you get a caring nurse. You're a great inspiration . Bty.. though i know you've had a difficult journey with them your health challenges. But i must say im jealous of your hands... being able to use them..lol.i have sclerodactyly. Thank you again for your inspiration.
Hello Michele I too have systemic sclerosis and the last two months I’ve been in and out of hospitals. It’s a horrible disease. Stay stron 🦋🌻
@@rosachavez6394hello. I wish you health. I hope you're getting good treatment. Stay strong also
You look amazing BTW. Love yr spirit. I can relate but I recovered on my own too. It's such a strange condition, I couldn't accept the changes, in denial and just wanted to live my life
mycoplasma and virus ..
I picked one up on a fluke at my drug store . I looooooove it. It feels so good and I’m so soft. And I like to use the rough side on my elbows knees and feet . I recommend ! And it suds your body wash so much
Thabk you so much ❤️ i truly needed this 👍🏻
Awesome video. Thanks for sharing. Keep the content coming. Hope you have an incredible day. Much love. Hugs
Love the message!!!
❤ thank you thank you for the encouragement!!!
You're an inspiration.. I've commented on a video before. I Also have Scleroderma with polymyositis.im shocked you can garden.im unable to bend at all, my hands and wrists very bad. I can't dress or wash myself much at all. I still work remotely (thankfully I can use speech to text. How are you able to use your hands well.? I have turned to a west African religion for healing.
Hey Melissa.. You look so good.. Do you have lung involvement also??
So how did you get into remission?:)
Hi Melissa thank you for making videos like these They really do help what advice would you give for a person living with this disease in term of work
Hi Melissa, same here I wondered about this disease and trying to still work, but yet it’s been difficult.
You look quite fresh girl. My vision is loving me a lot more and I need to get rid of my 8 COVID kilos.
Aawww thanks. Cool sculpting works!
Hey MELISSA. So how you been? Have missed you. Keep the content coming. Hope you have an incredible day. Much love. Hugs
I'm great! How are you?
Goodmorning You may be right! I thought that, Stiff Person Disorder, had to do with calcification of the joints?? Off subject, you are a beautiful woman.
So nice to see you M❤❤❤❤
I just came across this. Thank you so much for sharing. I thought I was the only one dealing with these symptoms. God bless you. I hope you are doing well.❤️
Hello Molly. Thank you for your kind words. I felt the same way. I'm doing well. Hope you are too.
Congratulations 👏🏽🎉 for your boutique!! Warm regards from Mexico city, Mexico.
👋🏾👋🏾👋🏾
We is or store at
Dominica
Happy to see you! Beautiful boutique!Yes, as low stress as we can get is the key to staying healthy with this disease. Keep doin... Keep goin... Never give up!
Hello!!!! Good to see you!
Hey girl,,, I am happy to see you,, strong Lady♥️💪
Hola! 👋 I hope you're very well. I'm watching your videos. I was thinking where is she? I'm glad to see you! Let us know how are you. ❤️🌻🌸
So nice to see you on the Tube🎉🎉❤❤❤
I am so happy to see you and hear you. Please keep the positive vibes coming. Thank you for sharing your thoughts, your story, and your love for others. May God continue to be with you.😊
Hello. I was very moved by your book. Very taken by your fortitude. I have scleroderma and myositis. You wrote you were healed by immune therapy?.. do you mean immune suppressant medication or stem cell transplant procedure?..thnks
Hi Michael. Thanks so much for your kind words. The Hodgkins lymphoma was cured through immune therapy. But I think the reset of my immune system also helped the scleroderma problem. Well, that and the chemo...
Hello. Thank you very much for your reply!. You are a great inspiration. I purchased your book. Your courage and attitude is impressive. So glad you're doing better. I wish you wonderful health and blessings. People take their health for granted while focusing on wealth, career etc..when without health simply living day to day becomes a challenge. Thanks again
Hi Melissa, did you ever have Gastro issues with bowl movements? I’ve been having a lot of that and of course acid reflex and sometimes at night I feel like something is stuck in my throat. Is there one particular herb that I can use for that ?
Sorry I should have waited you mentioned it in this video. Lol You look gray as always. And your covid vaccine video was reall awesome. Sounds so peaceful where you live. Sounded like ocean waves in the background
Melissa my provider insisted that I go on disability and eventually SSI. I’m mentally not ready but I have been having issues making it to work because it’s been getting harder for me everyday. Are you still on disability and if so did you have a difficult time going on disability because mentally you’ve always been independent, i think that’s my major issues. Good bless
Wow. Good question. I worked until the bitter end! LOL I don't remember all the details but I think I was basically at death's door when I went on disability and only because of a social worker at the hospital. I might not be remembering everything correctly but I know I worked then went to maritime school until it almost killed me. I get it. But I have talked a lot on this channel about listening to your body and doing what you need to to stay as well as possible. I would apply and just have it as a backup just in case. You can save the extra money to rely on if things get worse. 🙏🏿